Chronic Inflammatory Demyelinating Polyneuropathy

On May 10th I was admitted to hospital for almost 8 weeks. I was very close to death but was fortunate to get a very good doctor in Emergency. She got a team of 5 doctors together to figure out what was wrong with me. I was tested for everything you could imagine because my immune system attacked my nervous system. First diagnosis was Guillain Barre Syndrome but the neurologist disagreed and tested further and is treating me for Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). At first I couldn’t walk at all but since getting immunoglobulin infusions I can walk some with a walker and do a lot of things for myself that I couldn’t do. My feet are on fire daily but I have some feeling in them. I presently get 3 days of immunoglobulin Infusions every 28 days. It’s going to take a long time to recover but my neurologist is optimistic that I will recover. I have an appointment to see him next week so I’m hoping for a positive report. How long I will need the infusions is a very good question but one I don’t have an answer for. It is possible I may have to have them for the rest of my life.

For the people who donate blood I want to thank you for giving. I am a recipient of a blood product and appreciate your help for myself and all other recipients.


Amherst, Nova Scotia

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